Hosted Streamlit App

Background

• Families in Orange County with children having an intellectual or developmental disabilities/mental health (IDD/MH) diagnosis face an overwhelming amount of barriers to resources and support access
• Despite expressed challenges, healthcare leadership has dismissed the need for significant system changes
• The Advocacy for People with Disabilities project involves 30+ families sharing experiences, identifying barriers, and undergoing advocacy training
• The first phase involved collecting testimonies, resulting in a comprehensive list of identified barriers from their lived experiences
• This initiative aims to empower families and provider organizations to advocate for policy change by creating a "first-ever" dataset that reflects the experiences of families in a quantifiable way while also referring families to our advocacy group

Data Collection

• Anyone who witnessess an incident of system barriers is encouraged to fill out this barrier log
• Individuals filling out the log include but are not limited to:
  • Family/Caregivers
  • Social workers
  • Therapists (Behavioral/Speech/Occupational/Physical/Mental)
  • Medical Personnel (Physicians/Nurses/etc)
  • Community Navigators
  • CBO Leaders/Staff
  • RCOC Staff

Goal

• Begin to identify and understand the barriers of the target population
• Create a dataset than can be presented to OC leadership to acknowledge and expose the reality that their community is facing
• Track/analyze data for future research and use

Barrier Log Data

barrierReferralData.py:

• Contains the BarrierReferralData class which makes a call to the Jotform API, downloads the unstructured JSON data, parses it, and stores the data in a structured Pandas dataframe. It includes helper functions to parse the data and class methods that aid in analysis, updating data, and retreiving meta data on the API/JSON response.

Streamlit App

app.py:

• Contains the Plotly plots and logic for Streamlit App

Note:

• Jotform credentials/secrets are stored in Streamlit's secure deployment environment within a .toml file.
• Jotform Account Expires July 2024 (application functionality will depend on this).
• This is not academic research nor aims to make statistically significant findings with rigorous methodology
• The main goal of this initiative is for exploration of the lived experiences of OC's community with respect to healthcare barriers and children with IDD/MH