Data describing Biobank

roxmer edited this page Jul 24, 2015 · 2 revisions

We choose to present two definitions for the term "Biobank". One by BBMRI-ERIC and one by P3G as described by Fransson MN et al. Toward a common language for biobanking., Eur J Hum Genet. 2014 Apr 9. doi: 10.1038/ejhg.2014.45

  1. "Collections, repositories and distribution centres of all types of human biological samples, such as blood, tissues, cells or DNA and/or related data such as associated clinical and research data, as well as biomolecular resources, including model- and microorganisms that might contribute to the understanding of the physiology and diseases of humans" (BBMRI-ERIC)

  2. "An organized collection of human biological material and associated information stored for one or more research purposes" (P3G)

Attribute Code Attribute Name Allowed Values Description
MIABIS-2.0-01 ID Text Textual string of letters starting with the country code (according to standard ISO1366 alpha2) followed by the underscore “_” and post-fixed by a biobank ID or name specified by its juristic person (nationally specific)
MIABIS-2.0-02 Acronym Text Textual string of short name in use for the biobank. If applicable
MIABIS-2.0-03 Name Text Textual string of letters denoting the name of the biobank in English
MIABIS-2.0-04 URL Text Textual string of letters with the complete http-address for the biobank
MIABIS-2.0-05 Juristic Person Text Textual string of letters denoting the juristic person e.g. a university, concern, county council etc. for the biobank
MIABIS-2.0-06 Country Text ISO-standard (3166 alpha2), two letter code for the country of the biobank
MIABIS-2.0-07 Contact Information Structured data Contact information for the contact person of the biobank MIABIS-2.0-07
MIABIS-2.0-08 Description Text Textual string of letters with a description about the biobank in English.