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Patient Reported Drugs/Conditions #25

ericaVoss opened this Issue May 7, 2018 · 3 comments


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ericaVoss commented May 7, 2018

ITEM What should be done with patient reported drugs or conditions?
SOLUTION Patient reported data recommendation should land in the appropriate domain table (e.g. if a patient reports they had lymphoma it should land in the CONDITION_OCCURRENCE table. These data should be strongly typed so that it easily known which records are patient reported. Type concepts include
44814721-Patient reported
44818706-Patient reported device
44818704-Patient reported value
45905770-Patient Self-Reported Condition
44787730-Patient Self-Reported Medication
44786633 – numeric HRA values
44786634 – categorical HRA values
NEXT STEPS Ask the CDM WG to add this to the FAQ

@ericaVoss ericaVoss added the WG#3 label May 7, 2018

@ericaVoss ericaVoss added this to the 201803 F2F milestone May 7, 2018


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chandryou commented Jun 5, 2018

@ericaVoss , We've started to develop converting process of Patient Generated Health Data from Health Apps to CDM.

I released the sample data of a gentleman for 1 year: sample raw data from iPhone through QS Acess app
And I'm developing sample ETL for this: sample CDM for PGHD

Ultimately, the PGHD data of third-party health application of IT companies will be combined with hospital's CDM for only patients with approval.

I classified nine types of PGHD, which I'll start to convert first:

  1. Activity
  • Steps
  • Flight climbed
  • Distance
  1. Nutrition
  • Calorie intake (24hr/ breakfast, lunch, dinner)
  • Nutrient intake
  1. Sleep
  • Sleep start datetime
  • Sleep end datetime
  • Sleep total minutes
  • Minutes asleep
  • Time to fall sleep
  • Number of sleep periods
  1. Body measurements
  • Height
  • Weight
  • BMI
  • Lean body
  • Body fat
  1. Vital signs
  • Heart Rate
  • Blood pressure
  • Heart Rate Variability
  1. Self-medication
  • Insulin
  1. Self-laboratory measurement
  • glucose
  1. Self-report
  2. Mindfulness

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PRijnbeek commented Jun 15, 2018

We agree with the proposal


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ericaVoss commented Jul 9, 2018

In addition to this ticket we added ATLAS:

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