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| <!DOCTYPE HTML PUBLIC "-//IETF//DTD HTML//EN"> | |
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| <meta http-equiv="Content-Type" content="text/html; charset=iso-8859-1"> | |
| <meta name="GENERATOR" content="Microsoft FrontPage 3.0"> | |
| <title>Family/Teen Program</title> | |
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| <body background="_themes/blends/blegtext.gif" bgcolor="#CCCCCC" text="#000000" link="#990000" vlink="#666666" alink="#CC9900"><!--msnavigation--><table border="0" cellpadding="0" cellspacing="0" width="100%"><tr><td><!--mstheme--><font face="trebuchet ms, arial, helvetica"> | |
| <p align="left"><strong><font face="Arial"><b>The Endometriosis Association, International | |
| Headquarters<br> | |
| </b><small>8585 N. 76th Place, Milwaukee, WI 53223 USA<br> | |
| Phone: (414) 355-2200</small></font></strong><img src="images/Endo_small.gif" alt="Endo_small.gif (10423 bytes)" align="right" WIDTH="231" HEIGHT="169"><strong><font face="Arial"><br> | |
| <small>Fax: (414) 355-6065</small><br> | |
| <small>Toll Free: (800) 992-3636 | |
| | |
| </small></font></strong></p> | |
| <p align="left"><strong><font color="#000000">Analognet wuz here.. Happy Holidays!</font></strong></p> | |
| <p align="left"><strong><font face="Arial"><a href="mailto:endo@endometriosisassn.org"><small>Member | |
| Inquiries</small></a><br> | |
| <a href="registration.htm"><small>Non-member Inquiries</small></a></font></strong></p> | |
| <!--mstheme--></font></td></tr><!--msnavigation--></table><!--msnavigation--><table border="0" cellpadding="0" cellspacing="0" width="100%"><tr><td valign="top" width="1%"><!--mstheme--><font face="trebuchet ms, arial, helvetica"> | |
| <p align="left"><font face="Arial"><small><nobr><a href="./">Home</a></nobr><br><nobr><a href="endo.html">What is Endometriosis?</a></nobr><br><nobr><a href="symptoms.html">Symptoms of Endometriosis</a></nobr><br><nobr><a href="causes.html">What Causes Endometriosis?</a></nobr><br><nobr><a href="treatment.html">Treatment Options</a></nobr><br><nobr><a href="help.html">How the EA can help</a></nobr><br><nobr><a href="press.htm">Research</a></nobr><br><nobr><a href="States.htm">Support Groups/Chapters</a></nobr><br><nobr><a href="gift.htm">Gift Memberships</a></nobr><br><nobr><a href="Benefits.htm">Benefits of Membership</a></nobr><br><nobr>Family/Teen Program</nobr><br><nobr><a href="books.htm">The Endometriosis Sourcebook</a></nobr><br><nobr><a href="ChatRooms.htm">EA Chat Room</a></nobr><br><nobr><a href="table.htm">Catalog</a></nobr><br><nobr><a href="brochures.htm">Free Brochures</a></nobr><br><nobr><a href="guestboo.htm">Guestbook</a></nobr><br><nobr><a href="jobs.htm">Job Openings</a></nobr><br><nobr><a href="environment.htm">Endo and the Environment</a></nobr><br><nobr><a href="endonow.htm">End Endo Now Club</a></nobr><br><nobr><a href="index.htm">Home</a></nobr><br><nobr><a href="endowalk.htm">Endo Awareness Walk</a></nobr></small><img src="images/new2.gif" alt="new2.gif (304 bytes)" WIDTH="30" HEIGHT="15"><small><br> | |
| <a href="https://www2.security-one.com:2001/home/endo/MemForm.HTM">Membership & | |
| Donation Form</a><br> | |
| <a href="https://www2.security-one.com:2001/home/endo/Order.htm">Literature Order Form </a></small></font></p> | |
| <!--mstheme--></font></td><td valign="top" width="24"></td><!--msnavigation--><td valign="top"><!--mstheme--><font face="trebuchet ms, arial, helvetica"> | |
| <blockquote> | |
| <p align="center"><small><font face="Arial"><b><font color="#008000">NEW TEEN BROCHURE,</font> | |
| <font color="#800080">BULLETIN</font>, <font color="#000080">CONTACT NETWORK</font>, <font color="#800000">"BIG SISTER" PROGRAM, </font>AND<small> </small><font color="#008080">FAMILY/TEEN MEMBERSHIP<small> </small></font>ESTABLISHED</b></font></small></p> | |
| </blockquote> | |
| <blockquote> | |
| <p><strong><small><font face="Arial">Dear Mary Lou,</font></small></strong></p> | |
| <p><strong><small><font face="Arial">My daughter, Tamara, is 14 years old and was | |
| diagnosed with endo in 1996 when she was 12. She is currently a member of the Association | |
| so this application is to renew her membership…She would be especially interested in | |
| receiving newsletters relating to teenagers. Vol. 17, No. 4, 1996 was especially of | |
| interest to her.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Please let us know if an Association teen newsletter | |
| is available. It is going on 2 years since her diagnosis and she feels little to no relief | |
| from the various medications tried. We continue our search and try to remain optimistic. | |
| Some days that is very hard.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Thank you for the work you do for sufferers of endo. | |
| Tamara did her Grade 8 public speaking project on endometriosis this year.</font></small></strong></p> | |
| <p align="right"><strong><small><font face="Arial">Kathleen, Saskatchewan</font></small></strong></p> | |
| <p><strong><small><font face="Arial">P.S. Tamara’s Grandma is sending a donation | |
| which she wants to see used for further development of the teen support/education program.</font></small></strong></p> | |
| <p align="center"><strong><small><font face="Arial">__________</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Dear Correspondence Network:</font></small></strong></p> | |
| <p><strong><small><font face="Arial">My name is Bryce and I am seventeen years old. I was | |
| operated on five weeks ago for stage 3 endometriosis. I am interested in the teen | |
| correspondence network.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Thank you for your assistance.</font></small></strong></p> | |
| <p align="right"><strong><small><font face="Arial">Bryce, Illinois</font></small></strong></p> | |
| <p align="center"><strong><small><font face="Arial">__________</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Dear Endometriosis Association,</font></small></strong></p> | |
| <p><strong><small><font face="Arial">…I am 21 years old and am looking for someone my | |
| age who has endo and complicating health problems associated with it. </font></small></strong></p> | |
| <p><strong><small><font face="Arial">I also want to say thank you all for being there and | |
| the research you have done. When I was diagnosed I had never heard of endometriosis. The | |
| doctor I saw at that time never explained the seriousness of this disease. Needless to say | |
| as time went on and the pain increased I found another doctor who explained it better. | |
| Then I found out about the Association. At first I didn’t have the money to join* | |
| until last October when things were at their worst. I ordered <i>The Endometriosis | |
| Sourcebook</i> and <i>Living with Endometriosis.</i> <i>(Editor's note: The </i>"Living"<i> | |
| book is no longer in print.) </i>They both helped me to deal with this disease and to know | |
| that I was not alone. My only regret is that I didn’t find a doctor who took me | |
| seriously when I was 13 years old and on narcotic pain relievers that just took the edge | |
| off. I was 19 before my doctor decided maybe something was seriously wrong…I believe | |
| that taking Synarel now is just prolonging what will eventually happen later in my life. I | |
| have come to terms that I will eventually have a hysterectomy…I am determined to hold | |
| out a little longer since I want children. However, if it comes again to where my life has | |
| to stop, that’s where I draw the line.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Again, I am grateful for what you are doing and | |
| hopefully we can get the doctors to take seriously a 13-year-old in pain.</font></small></strong></p> | |
| <p align="right"><strong><small><font face="Arial">Dawn, Pennsylvania </font></small></strong></p> | |
| <p><strong><small><font face="Arial">*The Association budgets for gift memberships for | |
| those unable to afford dues and a few members donate dues for others. For teens and young | |
| women, family members are often happy to pay their dues for them. It’s something they | |
| can do to help! So ask your family or friends if you find yourself unable to join or ask | |
| about gift memberships.</font></small></strong></p> | |
| <p align="center"><strong><small><font face="Arial">__________</font></small></strong></p> | |
| <p><strong><small><font face="Arial">My daughter Gwen was recently diagnosed with | |
| endometriosis after spending the last 3-4 years trying to find a doctor who would take her | |
| pain seriously. She is just 19 yrs. old and was told over and over, "it’s just | |
| menstrual cramps." We knew that wasn’t correct but had no idea until recently | |
| what it was. Unfortunately her condition is now fairly advanced, she is in almost constant | |
| pain along with other problems. We have finally found a doctor who understands this | |
| disease and takes her seriously.</font></small></strong></p> | |
| <p><strong><font face="Arial"><small>I hope and pray we can get her condition under | |
| control. At 19 yrs. old her life has basically been put on hold, between the pain and | |
| complications she basically cannot function normally most</small><font size="1"> </font><small>days.</small></font></strong></p> | |
| <p><strong><small><font face="Arial">She was a full time college student and now she | |
| can’t even manage to sit through her classes. As a parent, as her mother, it is <u>unbearable</u> | |
| to watch my child in extreme pain, afraid, depressed and frightened. A client of mine who | |
| has endometriosis loaned me her copy of <i>The Endometriosis Sourcebook </i>which is how I | |
| found you. We (Gwen and I) were so thrilled that there was somewhere to turn for support | |
| and information. I can’t tell you what it meant to us to find the EA! My 15 yr. old | |
| daughter, Colleen, was just diagnosed with endo. Colleen was showing signs of the same | |
| nature when Gwen was the same age. I’m beginning to feel like we’ve entered a | |
| nightmare.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">If you could also include 50 of your free brochures | |
| we will make sure that they are made available at our doctor’s office. If there is | |
| any other way that Gwen, Colleen, or myself can help we would be happy to do that. It is | |
| obvious this information needs to get out to women urgently. Gwen’s doctor told us | |
| that had her condition been correctly diagnosed 3 years ago we would have had a lot more | |
| options. Because of her age she wasn’t taken seriously. This began at age 15-16, and | |
| even though I was there with her trying to convince the doctors this wasn’t | |
| "just menstrual cramps" we still were basically ignored and treated like crazy | |
| women. The medical profession’s ignorance of this disease angers me terribly and if | |
| we can help change this and get the information to women before they wind up in my | |
| daughter’s extreme condition we would be more than happy to help.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Again, thank you for being there, and thank you for | |
| all your time and hard work. When we got your information packet it was like a lifeline of | |
| hope! </font></small></strong></p> | |
| <p align="right"><strong><small><font face="Arial">Linda, Michigan </font></small></strong></p> | |
| <p align="center"><strong><small><font face="Arial"><img src="DotswaniA072.gif" width="294" height="16"></font></small></strong></p> | |
| <p align="left"><strong><small><font face="Arial">It is heartbreaking letters like these | |
| that have prompted the EA to start several new programs for girls and teens with | |
| endometriosis, from pre-teens to early 20s. Hard as endometriosis is for an adult woman, | |
| adults are likely to have more maturity, independence, and perhaps the life experience and | |
| skills to help them cope to some degree. Girls and teens usually do not have these, making | |
| them particularly vulnerable to the cruelties of this disease.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Thanks to the assistance of freelance writer Christel | |
| Wendelberger, we have been able to update our teen brochure, adding graphics and making it | |
| more acceptable to mid and older teens. Our first teen brochure, in pink, has been used | |
| since 1986 and will continue to be used, in a slightly revised form, for pre-teen, middle | |
| school, and early teens. Members are invited to distribute the teen brochures to area | |
| schools, Girl Scouts, Planned Parenthood clinics, etc. Call Nancy Williams at (414) | |
| 355-2200, 8:30 – 5:00 CST, or e-mail Nancy with your request.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Christel is also editing <i>TeenSource, </i>our new | |
| teen bulletin, which will be issued quarterly. Each four-page issue contains features | |
| especially geared to teens: a personal story of one girl’s struggle with endo, a | |
| write-in advice or contact request column, an Advice from the Experts piece oriented to | |
| teens, and a glossary of terms used in the bulletin. We’re looking forward to the | |
| feedback of young women on <i>TeenSource.</i></font></small></strong></p> | |
| <p><strong><small><font face="Arial">Because teens frequently wish to be in contact with | |
| other teens and their issues can be so different than the issues of older women, we are | |
| also establishing a Teen Contact Network. This network will operate like our | |
| correspondence networks. The teen member simply lets us know that she would like to be in | |
| contact with other teens, and her name is added to the list. The teenagers then make | |
| contact with each other in any way they wish—by mail, phone, fax, e-mail. To | |
| participate in the Teen Contact Network, contact Pam McClendon at headquarters.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Finally, we are establishing a Big Sister Program. | |
| Some teens with endometriosis do not have parents or relatives who understand the disease | |
| (although we urge these families to learn about it because of the tough decisions and | |
| support the teen needs). In addition, an experienced woman with endo can be a tremendous | |
| guide and role model for a teenager. Some Big Sisters will be in the same communities as | |
| their teen "little sister"; others may not be but will maintain contact with | |
| their "little sister" by phone, e-mail, mail, fax. In either case, we believe | |
| the coping tips, health tips, ideas on finding good medical care, and most of all, the | |
| listening skills of the Big Sister will be tremendously helpful to the youngster and her | |
| family. To participate in the Big Sister Program, contact Tina Wagner, Support Program | |
| Coordinator, at headquarters. </font></small></strong></p> | |
| <p><strong><small><font face="Arial">Because we are aware of so many families with | |
| endometriosis and because coping with this disease is a family challenge, we have | |
| established family memberships. Family membership includes a full regular membership with | |
| all the benefits of membership, including the international newsletter, as well as all the | |
| parts of the teen program—the teen quarterly bulletin, teen brochures, Teen Contact | |
| Network, and the Big Sister Program. Family membership is $50 (the regular $35 for the | |
| regular membership plus $15 for the teen membership). We strongly recommend that family | |
| members of girls and teens be members and participate in local meetings, contact networks, | |
| read the high quality educational materials available from the Association, and keep up | |
| with new developments. A teenager cannot possibly navigate the complex waters of | |
| endometriosis treatment alone and needs informed parents and guardians to assist her with | |
| this. For that reason, teen memberships will not be provided separate from family | |
| membership.</font></small></strong></p> | |
| <p><strong><small><font face="Arial">Unfortunately, we have not been able to complete a | |
| videotape on teenagers and endometriosis and are still pursuing full funding for this. | |
| Anyone with leads, let us know! We are also considering adding a teen chat room to our | |
| EA-facilitated chat rooms. </font></small></strong></p> | |
| <p><strong><small><font face="Arial">Together, we can help the next generation so they do | |
| not suffer the way we did! </font></small></strong></p> | |
| <p align="center"><strong><small><font face="Arial"><a href="index.htm">Home Page</a></font> | |
| </small></strong></p> | |
| </blockquote> | |
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