| BioKansas 2024 |
Overland Park KS |
August 2024 |
Speaker |
| LymeMIND 2020 |
Virtual |
October 2020 |
Co-chair and speaker |
| LymeMIND 2019 |
Virtual |
October 2019 |
Invited speaker |
| Right to Science |
Dubrovnik, Croatia |
May 18-22 2019 |
Invited speaker |
| Personalized Medicine World Conference (HOLD) |
Santa Clara |
Jan 21-23 2019 |
invited speaker |
| Lyme Innnovation Roundtable by HHS CTO |
Washington DC |
Dec 4 2018 |
invited round table |
| PRIMR Conference |
San Diego |
Nov 15-17 2018 |
participant |
| Global Community Bio Summit |
Cambridge MA |
Oct 26-28 2018 |
participant |
| Grand Rounds |
NYC at ISMMS |
Oct 24 2018 |
invited speaker |
| Participatory Medicine Conference |
Boston |
Oct 17 2018 |
invited speaker |
| Open Health Workshop |
CRI Paris |
Oct 10-12 2018 |
co-organizer |
| LymeMind |
NYC |
Oct 2-3 2018 |
invited speaker |
| EO |
Boston |
June 28-30, 2018 |
invited Speaker |
| CIFAR-GET |
Toronto |
June 4-5, 2018 |
co-organizer |
| Norwood Club Panel |
NYC |
March 20, 2018 |
invited speaker |
| The Rise of the New Bio-Citizen: Ethics, Legitimacy, and Responsible Governance in Citizen-Driven Biomedical Research |
DC |
March 12-13, 2018 |
Invited Speaker |
| Right to Science Working Group |
Carnegie Council, NYC |
Jan 29-30, 2018 |
Invited Contributor |
| Global Community Biosummit |
MIT Cambridge MA |
September 22-24, 2017 |
co-organizer, speaker |
| Partnering for Cures. Panel: "Conquering Clinical Research: Engagement Today for Treatments Tomorrow" video |
Boston |
July 12, 2017 |
Invited moderator |
| Learning from Patient Experience: New Frontiers in Patient-Partnered Research |
Broad Institute, Cambridge MA |
June 12-13 20-22, 2017 |
Invited speaker |
| GP-Write |
NYGC NYC, NY |
May 9-10, 2017 |
Invited speaker |
| Sage Assembly |
Seattle |
April 20-22, 2017 |
Invited speaker |
| Genetic Alliance 30th Anniversary Meeting |
Bethesda |
March 9-10 |
Facilitator |
| Return of Results in the NIH All of Us Program video (my talk starts at 4:09:37) |
Bethesda |
March 6-7, 2017 |
Invited Speaker |
| Biotech Futures: Privacy in the Era of Personal Genomics |
Data & Society, NYC |
January 19, 2017 |
Invited Speaker |
| PBS documentary interview with Ella video "Mutant Menu" |
NYC |
Dec 12, 2016 |
|
| Deinard Memorial Lecture Series on Law & Medicine: "How Patients are Creating the Future of Medicine: From Citizen Science to Precision Medicine." Video (my talk starts @ 13 min mark) See also my essay, "Participant Power" |
Minnesota |
Dec 6 2016 |
Invited Speaker |
| Partnering for Cures. Panel: R&D Remodel: Building Trust and Changing the Culture of Research Video |
NYC |
Nov 2016 |
Invited Speaker |
| Mozfest |
London UK |
Oct 27-30 2016 |
Speaker |
| Sage BioNetworks |
Seattle, WA |
Oct 18-20 2016 |
Speaker |
| White House Frontiers Conference |
Pittsburgh, PA |
Oct 13-14 2016 |
Invited Guest |
| EO Nerve |
Boston, MA |
Sep 30-Oct 1 2016 |
Invited speaker |
| NE Big Data Hub Workshop |
Philadelphia, PA |
Sep 29 2016 |
Invited speaker |
| Stanford MedX |
Palo Alto, CA |
Sept 17 2016 |
Invited speaker |
| Nairobi Work Week |
Nairobi, Kenya |
July 26 - August 1, 2016 |
Speaker & Participant |
| White House |
Washington DC |
June 28-29, 2016 |
Invited contributor |
| Mozilla Global Sprint |
Washington DC |
June 3, 2016 |
Collaborator |
| White House |
Washington DC |
June 2-3, 2016 |
Invited contributor |
| MedX NYC Pop-up |
NYC, NY |
May 26, 2016 |
Invited speaker |
| Open Humans Data Dive |
San Diego CA |
May 19, 2016 |
Participant and co-organizer |
| [Quantified Self Public Health] (more) |
San Diego CA |
May 18, 2016 |
Invited speaker |
| HDE Network Meeting |
San Diego CA |
May 17, 2016 |
Invited speaker |
| Biology of Genomes |
Cold Spring Harbor, NY |
May 12, 2016 |
Invited speaker |
| GET Conference |
Harvard Medical School Boston MA |
April 26, 2016 |
Organizer |
| GET Labs |
Harvard Medical School Boston MA |
April 25, 2016 |
Organizer |
| GETy Awards |
Harvard Medical School Boston MA |
April 25, 2016 |
Organizer |
| Bio-IT World |
Boston MA |
April 7, 2016 |
Invited speaker |
| Shenzhen Assembly: Open Innovation and the Environment |
Shenzhen, China |
March 24-26, 2016 |
Invited speaker |
| Open Data Roundatable on Privacy |
Washington DC |
March 24, 2016 |
Invited contributor |
| Precision Medicine Initiative Summit at the White House |
Washington DC |
Feb 25, 2016 |
Invited contributor |
| Working Open Workshop |
Berlin, Germany |
Feb 4-6, 2015 |
Invited speaker |
| AMIA Annual Symposium |
San Francisco, CA |
November 17, 2015 |
Invited speaker |
| Mozilla Festival |
London, UK |
November 4-7, 2015 |
Contributor |
| ONC Consumer Health Summit |
Washington DC |
October 1, 2015 |
Invited speaker |
| GET Global |
Vienna, Austria |
September 17-19, 2015 |
Co-Organizer |
| White House Champions of Change |
Washington DC |
July 8, 2015 |
Invited Guest |
| Precision Medicine Initiative Workshop |
Countway Library, Boston MA |
June 25, 2015 |
Invited Contributor |
| White House Precision Medicine & Privacy Roundtable |
Washington DC |
March 9-10, 2015 |
Invited Contributor |
| Precision Medicine Initiative Announcement |
E Wing, White House, Washington DC |
January 30, 2015 |
Invited Guest |
| Quantified Self Public Health Meeting |
UCSD San Diego, CA |
2014 |
Invited Speaker video |
| “Ask a Biosafety Expert: User-driven advisory service for the Do-It-Yourself Biology (DIYbio) Community” |
American Biological Safety Association. Kansas City, MO. |
October 23, 2013 |
Invited speaker |
| “The Personal Genome Project and the Open Humans Ecosystem”. |
Citizen Science: Think Tank on Citizen Engagement in Biomedical Research. Bethesda, MD. |
May 23-24, 2013. |
Invited speaker |
| “Domestication of Human Genome Technologies” |
The 15th Genomics Standards Consortium. Natcher Conference Center, NIH. Bethesda, MD |
April 24, 2013 |
Invited speaker |
| “Standards for Reusable Genomic Resources” |
Sage BioNetworks Commons Congress. San Francisco CA |
April 20, 2013 |
Invited speaker |
| “DIYbio: extraordinary biotechnologies for everyday life.” |
Small is the New Big: Designing Our Future at the Nanoscale, Humanscale, and Beyond. IDEAS Series Autodesk Gallery at One Market San Francisco, California |
March 27-29, 2012. |
Invited speaker |
| “Open Consent Frameworks for Public Genomics” |
Keystone Symposia. Complex Traits: Genomics and Computational Approaches. Breckenridge, CO. |
February 20-25, 2012 |
Invited speaker |
| “Do It Yourself Biology” |
Gaite Lyrique in Paris |
November 2011 |
Invited speaker |
| “BioWeatherMap” |
Presented at Design Night at the Autodesk Gallery in San Francisco |
Sept 15, 2011 |
Invited speaker |
| “DIYbio: Origin, Activities & Scenarios for the Future.” |
Presented to the Presidential Commission for the Study of Bioethical Issues. Philadelphia. |
September 14, 2010 |
Invited speaker |
| “BioSecurity: How synthetic biology is changing the way we look at biology and biological threats.” |
The Synthetic Biology Project. Woodrow Wilson International Center for Scholars. |
March 11, 2010. |
Invited speaker |
| “Building Bridges Around Building Genomes” |
Synthetic Genomics Workshop. San Francisco |
Aug 4-5 2009. |
Invited panelist. |
| “Health 2.0, From Clinics to Clicks: Shifting Power Online”. |
TieCon East |
May 2008 |
Invited panelist |
| “Instrumenting the medical enterprise for discovery: dissolving the barriers between clinical care and research” |
First AMIA summit on translational bioinformatics |
March 2008 |
Panel moderator |
| “What the future holds” |
Personalized medicine: breaking barriers and achieving results. Harvard Medical School |
October 11, 2007. |
Invited speaker |
| “Citizen Science and Patient Communities on the Web.” |
Dolan DNA Learning Center, Cold Spring Harbor Laboratories |
October 2006. |
Invited speaker |
| “Digital Health – What’s in the Future”. |
Moderated by Andy Kessler (author, The End of Medicine), Presented by Commonwealth Club of Silicon Valley, Computer History Museum, |
September 2006 |
Invited Panelist |