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TALKS, PANELS, & EVENTS

Event Location Date Role
LymeMIND 2020 Virtual October 2020 Co-chair and speaker
LymeMIND 2019 Virtual October 2019 Invited speaker
Right to Science Dubrovnik, Croatia May 18-22 2019 Invited speaker
Personalized Medicine World Conference (HOLD) Santa Clara Jan 21-23 2019 invited speaker
Lyme Innnovation Roundtable by HHS CTO Washington DC Dec 4 2018 invited round table
PRIMR Conference San Diego Nov 15-17 2018 participant
Global Community Bio Summit Cambridge MA Oct 26-28 2018 participant
Grand Rounds NYC at ISMMS Oct 24 2018 invited speaker
Participatory Medicine Conference Boston Oct 17 2018 invited speaker
Open Health Workshop CRI Paris Oct 10-12 2018 co-organizer
LymeMind NYC Oct 2-3 2018 invited speaker
EO Boston June 28-30, 2018 invited Speaker
CIFAR-GET Toronto June 4-5, 2018 co-organizer
Norwood Club Panel NYC March 20, 2018 invited speaker
The Rise of the New Bio-Citizen: Ethics, Legitimacy, and Responsible Governance in Citizen-Driven Biomedical Research DC March 12-13, 2018 Invited Speaker
Right to Science Working Group Carnegie Council, NYC Jan 29-30, 2018 Invited Contributor
Global Community Biosummit MIT Cambridge MA September 22-24, 2017 co-organizer, speaker
Partnering for Cures. Panel: "Conquering Clinical Research: Engagement Today for Treatments Tomorrow" video Boston July 12, 2017 Invited moderator
Learning from Patient Experience: New Frontiers in Patient-Partnered Research Broad Institute, Cambridge MA June 12-13 20-22, 2017 Invited speaker
GP-Write NYGC NYC, NY May 9-10, 2017 Invited speaker
Sage Assembly Seattle April 20-22, 2017 Invited speaker
Genetic Alliance 30th Anniversary Meeting Bethesda March 9-10 Facilitator
Return of Results in the NIH All of Us Program video (my talk starts at 4:09:37) Bethesda March 6-7, 2017 Invited Speaker
Biotech Futures: Privacy in the Era of Personal Genomics Data & Society, NYC January 19, 2017 Invited Speaker
PBS documentary interview with Ella video "Mutant Menu" NYC Dec 12, 2016
Deinard Memorial Lecture Series on Law & Medicine: "How Patients are Creating the Future of Medicine: From Citizen Science to Precision Medicine." Video (my talk starts @ 13 min mark) See also my essay, "Participant Power" Minnesota Dec 6 2016 Invited Speaker
Partnering for Cures. Panel: R&D Remodel: Building Trust and Changing the Culture of Research Video NYC Nov 2016 Invited Speaker
Mozfest London UK Oct 27-30 2016 Speaker
Sage BioNetworks Seattle, WA Oct 18-20 2016 Speaker
White House Frontiers Conference Pittsburgh, PA Oct 13-14 2016 Invited Guest
EO Nerve Boston, MA Sep 30-Oct 1 2016 Invited speaker
NE Big Data Hub Workshop Philadelphia, PA Sep 29 2016 Invited speaker
Stanford MedX Palo Alto, CA Sept 17 2016 Invited speaker
Nairobi Work Week Nairobi, Kenya July 26 - August 1, 2016 Speaker & Participant
White House Washington DC June 28-29, 2016 Invited contributor
Mozilla Global Sprint Washington DC June 3, 2016 Collaborator
White House Washington DC June 2-3, 2016 Invited contributor
MedX NYC Pop-up NYC, NY May 26, 2016 Invited speaker
Open Humans Data Dive San Diego CA May 19, 2016 Participant and co-organizer
[Quantified Self Public Health] (more) San Diego CA May 18, 2016 Invited speaker
HDE Network Meeting San Diego CA May 17, 2016 Invited speaker
Biology of Genomes Cold Spring Harbor, NY May 12, 2016 Invited speaker
GET Conference Harvard Medical School Boston MA April 26, 2016 Organizer
GET Labs Harvard Medical School Boston MA April 25, 2016 Organizer
GETy Awards Harvard Medical School Boston MA April 25, 2016 Organizer
Bio-IT World Boston MA April 7, 2016 Invited speaker
Shenzhen Assembly: Open Innovation and the Environment Shenzhen, China March 24-26, 2016 Invited speaker
Open Data Roundatable on Privacy Washington DC March 24, 2016 Invited contributor
Precision Medicine Initiative Summit at the White House Washington DC Feb 25, 2016 Invited contributor
Working Open Workshop Berlin, Germany Feb 4-6, 2015 Invited speaker
AMIA Annual Symposium San Francisco, CA November 17, 2015 Invited speaker
Mozilla Festival London, UK November 4-7, 2015 Contributor
ONC Consumer Health Summit Washington DC October 1, 2015 Invited speaker
GET Global Vienna, Austria September 17-19, 2015 Co-Organizer
White House Champions of Change Washington DC July 8, 2015 Invited Guest
Precision Medicine Initiative Workshop Countway Library, Boston MA June 25, 2015 Invited Contributor
White House Precision Medicine & Privacy Roundtable Washington DC March 9-10, 2015 Invited Contributor
Precision Medicine Initiative Announcement E Wing, White House, Washington DC January 30, 2015 Invited Guest
Quantified Self Public Health Meeting UCSD San Diego, CA 2014 Invited Speaker video
“Ask a Biosafety Expert: User-driven advisory service for the Do-It-Yourself Biology (DIYbio) Community” American Biological Safety Association. Kansas City, MO. October 23, 2013 Invited speaker
“The Personal Genome Project and the Open Humans Ecosystem”. Citizen Science: Think Tank on Citizen Engagement in Biomedical Research. Bethesda, MD. May 23-24, 2013. Invited speaker
“Domestication of Human Genome Technologies” The 15th Genomics Standards Consortium. Natcher Conference Center, NIH. Bethesda, MD April 24, 2013 Invited speaker
“Standards for Reusable Genomic Resources” Sage BioNetworks Commons Congress. San Francisco CA April 20, 2013 Invited speaker
“DIYbio: extraordinary biotechnologies for everyday life.” Small is the New Big: Designing Our Future at the Nanoscale, Humanscale, and Beyond. IDEAS Series Autodesk Gallery at One Market San Francisco, California March 27-29, 2012. Invited speaker
“Open Consent Frameworks for Public Genomics” Keystone Symposia. Complex Traits: Genomics and Computational Approaches. Breckenridge, CO. February 20-25, 2012 Invited speaker
“Do It Yourself Biology” Gaite Lyrique in Paris November 2011 Invited speaker
“BioWeatherMap” Presented at Design Night at the Autodesk Gallery in San Francisco Sept 15, 2011 Invited speaker
“DIYbio: Origin, Activities & Scenarios for the Future.” Presented to the Presidential Commission for the Study of Bioethical Issues. Philadelphia. September 14, 2010 Invited speaker
“BioSecurity: How synthetic biology is changing the way we look at biology and biological threats.” The Synthetic Biology Project. Woodrow Wilson International Center for Scholars. March 11, 2010. Invited speaker
“Building Bridges Around Building Genomes” Synthetic Genomics Workshop. San Francisco Aug 4-5 2009. Invited panelist.
“Health 2.0, From Clinics to Clicks: Shifting Power Online”. TieCon East May 2008 Invited panelist
“Instrumenting the medical enterprise for discovery: dissolving the barriers between clinical care and research” First AMIA summit on translational bioinformatics March 2008 Panel moderator
“What the future holds” Personalized medicine: breaking barriers and achieving results. Harvard Medical School October 11, 2007. Invited speaker
“Citizen Science and Patient Communities on the Web.” Dolan DNA Learning Center, Cold Spring Harbor Laboratories October 2006. Invited speaker
“Digital Health – What’s in the Future”. Moderated by Andy Kessler (author, The End of Medicine), Presented by Commonwealth Club of Silicon Valley, Computer History Museum, September 2006 Invited Panelist