Study URIs #552

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kerfors opened this Issue Nov 5, 2016 · 3 comments

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@kerfors
kerfors commented Nov 5, 2016

New issue combining #510 and #502
One thing "we need to spend a little on making sure the information is discoverable, machine readable, and impactful" (from the nice interview with Ben M on AllTrials) is to establish persistent URIs for studies.

That is, http-based URIs with a look-up URL (re-direct /) resolver service and with a promise of persistence. So, instead of a text string such as "D5130L00067" as a secondary/sponsor identifier in e.g. CT.gov. I am pushing for study URIs such as http://clinicaltrials.astrazeneca.net/study/D5130L00067. A first step is an internal process to assign azct.IDs to our 20.000 listed studies internally and an internal look-up service.

I have argued the same for CT.gov but my understanding from interactions with some of the people behind it - they see their URLs as pragmatic, persistent study URIs = study page URIs https://clinicaltrials.gov/ct2/show/NCT02022748.

Would like to have this also for the same study represented in OpenTrials, either distinct from the study page URL, or deliberately using the same http schema for them. I may think http://explorer.opentrials.net/trials/d869c6e6-8c32-11e6-a776-0242ac12000b is indicating a page URL more than a study URI.

I would like to have peristens namespaces for studies identifiers so I make assertions like these.
azct:D5130L00067 owl:sameAs nct:NCT02022748
azct:D5130L00067 owl:sameAs opentrials:d869c6e6-8c32-11e6-a776-0242ac12000b

(I've also posted my thoughts here as a post on my blog http://kerfors.blogspot.se/)

@benmeg
Contributor
benmeg commented Jan 31, 2017

@vitorbaptista and I just got off a call with an organisation who wanted to integrate/link to our trials and we both had the thought about this issue.

A suggestion - as well as what we currently provide (ending in an OpenTrials ID):

https://explorer.opentrials.net/trials/c98ff25c-1b98-4bd9-a249-7943a4738aa5

We could also allow other trial IDs, e.g:

https://explorer.opentrials.net/trials/NCT00034749 (link will not currently work).

Thoughts? @kerfors

@kerfors
kerfors commented Feb 7, 2017

Hi Ben and thanks for reaching out. My thoughts:

@pwalsh
Member
pwalsh commented Feb 22, 2017

closing as WONTFIX until phase II. We have stable identifiers.

@pwalsh pwalsh closed this Feb 22, 2017
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