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metadata.json
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metadata.json
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{
"CANPATH": {
"available_data_types": {
"biospecimens": true,
"environmental_data": true,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Canadian Partnership for Tomorrow's Health",
"countries": [
"Canada"
],
"current_enrollment": 330000,
"enrollment_period": "2008:Ongoing",
"irb_approved_data_sharing": true,
"pi_lead": "Philip Awadalla",
"target_enrollment": null,
"website": "https://canpath.ca/"
},
"CHOP": {
"available_data_types": {
"biospecimens": true,
"environmental_data": true,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Center for Applied Genomics, Children's Hospital of Philadelphia",
"countries": [
"USA"
],
"current_enrollment": 130000,
"enrollment_period": "2006:Ongoing",
"irb_approved_data_sharing": true,
"pi_lead": "Hakon Hakonarson",
"target_enrollment": 2000000,
"website": "caglab.org"
},
"EB": {
"available_data_types": {
"biospecimens": true,
"environmental_data": false,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Estonian Biobank",
"countries": [
"Estonia"
],
"current_enrollment": 200000,
"enrollment_period": "2002:2021",
"irb_approved_data_sharing": false,
"pi_lead": "Kristi Lall",
"target_enrollment": null,
"website": null
},
"ELSABRASIL": {
"available_data_types": {
"biospecimens": true,
"environmental_data": true,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "ELSA-Brasil",
"countries": [
"Brazil"
],
"current_enrollment": 15105,
"enrollment_period": "2008:2010",
"irb_approved_data_sharing": true,
"pi_lead": "Paulo Lotufo; Isabela Besenor; Sandhi Barreto; Bruce Duncan; Maria Ines Schimdt; Jose Mill; Rosane Griep; Conceicao Almeida; Maria Del Carmen Molina; and others.",
"target_enrollment": 15105,
"website": "www.elsa.org.br"
},
"GCS": {
"available_data_types": {
"biospecimens": true,
"environmental_data": true,
"genomic_data": false,
"phenotypic_clinical_data": true
},
"cohort_name": "Golestan Cohort Study",
"countries": [
"Iran"
],
"current_enrollment": 50000,
"enrollment_period": "2004:2008",
"irb_approved_data_sharing": true,
"pi_lead": "Reza Malekzadeh, Christian Abnet, Paolo Boffetta, Paul Brennan, Farin Kamangar, Arash Etemadi",
"target_enrollment": null,
"website": "https://dceg2.cancer.gov/gemshare/"
},
"GE": {
"available_data_types": {
"biospecimens": true,
"environmental_data": false,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Genomics England / 100,000 Genomes Project",
"countries": [
"England"
],
"current_enrollment": 100000,
"enrollment_period": "2013:2018",
"irb_approved_data_sharing": true,
"pi_lead": "Mark Caulfield",
"target_enrollment": 500000,
"website": "https://www.genomicsengland.co.uk/"
},
"GS": {
"available_data_types": {
"biospecimens": true,
"environmental_data": false,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Generations Study",
"countries": [
"UK",
"England",
"Scotland",
"Wales",
"Northern Ireland",
"Isle of Man",
"Channel Islands"
],
"current_enrollment": 113000,
"enrollment_period": "2003:2015",
"irb_approved_data_sharing": true,
"pi_lead": "Anthony Swerdlow",
"target_enrollment": 100000,
"website": "http://www.breakthroughgenerations.org.uk/home"
},
"HUNT": {
"available_data_types": {
"biospecimens": true,
"environmental_data": true,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "HUNT 70+, The HUNT Study",
"countries": [
"Norway"
],
"current_enrollment": 11681,
"enrollment_period": "2017:2019",
"irb_approved_data_sharing": false,
"pi_lead": "H\u00e5vard Skjellegrind, Geir Selb\u00e6k",
"target_enrollment": null,
"website": "https://www.ntnu.edu/hunt"
},
"KOGES": {
"available_data_types": {
"biospecimens": true,
"environmental_data": true,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Korean Genome and Epidemiology Study (KoGES)",
"countries": [
"South Korea"
],
"current_enrollment": 235000,
"enrollment_period": "2001:2013",
"irb_approved_data_sharing": true,
"pi_lead": "Hyun Young Park",
"target_enrollment": null,
"website": "http://www.cdc.go.kr/contents.es?mid=a50401010100#1"
},
"PLCO": {
"available_data_types": {
"biospecimens": true,
"environmental_data": true,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Prostate, Lung, Colorectal and Ovarian Cancer Screening Trial",
"countries": [
"U.S."
],
"current_enrollment": 155000,
"enrollment_period": "1993:2001",
"irb_approved_data_sharing": true,
"pi_lead": "Neal Freedman, Paul Pinsky",
"target_enrollment": null,
"website": "cdas.cancer.gov/plco/"
},
"SAPRIN": {
"available_data_types": {
"biospecimens": true,
"environmental_data": false,
"genomic_data": false,
"phenotypic_clinical_data": true
},
"cohort_name": "SAPRIN (South African Population Research Infrastructure Network)",
"countries": [
"South Africa"
],
"current_enrollment": 350000,
"enrollment_period": "1993:Ongoing",
"irb_approved_data_sharing": true,
"pi_lead": "Kobus Herbst",
"target_enrollment": 700000,
"website": "http://saprin.mrc.ac.za/"
},
"UKLWC": {
"available_data_types": {
"biospecimens": true,
"environmental_data": false,
"genomic_data": false,
"phenotypic_clinical_data": true
},
"cohort_name": "UKCTOCS Longitudinal Women's Cohort (UKLWC)",
"countries": [
"England",
"Wales",
"Northern Ireland"
],
"current_enrollment": 202638,
"enrollment_period": "2001:2005",
"irb_approved_data_sharing": false,
"pi_lead": "Usha Menon",
"target_enrollment": 200000,
"website": "http://uklwc.mrcctu.ucl.ac.uk/"
},
"VZ": {
"available_data_types": {
"biospecimens": true,
"environmental_data": false,
"genomic_data": true,
"phenotypic_clinical_data": true
},
"cohort_name": "Africa Health Research Institute (AHRI) Population Cohort",
"countries": [
"South Africa"
],
"current_enrollment": 130000,
"enrollment_period": "2000:Ongoing",
"irb_approved_data_sharing": true,
"pi_lead": "Willem Hankom",
"target_enrollment": 130000,
"website": "https://www.ahri.org"
}
}