When seeking healthcare providers to help with MCAS, keep in mind that MCAS is a relatively new and evolving field. MCAS requires a multidisciplinary approach, as it can involve multiple systems in the body, and often involves a combination of medication, lifestyle adjustments, and dietary modifications.
What to do:
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Seek medical professionals: Find ones who are familiar with the condition and its diagnostic criteria.
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Seek specialists: Find ones who are willing to work collaboratively with you to develop a personalized treatment plan.
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Ask for referrals: Consult with your primary care physician or a trusted specialist to ask for referrals to experts who can help with MCAS.
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Research online: Look for healthcare providers and medical centers that have experience with MCAS by searching online or visiting the websites of patient advocacy organizations related to MCAS.
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Contact patient advocacy organizations: Organizations like The Mastocytosis Society and the Mast Cell Action Group may be able to provide recommendations for knowledgeable healthcare providers.
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Consider telemedicine: If you are unable to find a local specialist, consider telemedicine options where you can consult with experts remotely.