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README.md

File metadata and controls

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How to describe a resource

Here we list the steps to describe the metadata for an EJPRD resource.

Step 1

Download the Excel spreadsheet or make a copy of the Google spreadsheet EJPRD Resource Metadata template.

Step 2

Fill in the different sheets in the spreadsheet as is appropriate for your organisation or organisations and the resources they provide.

  1. Organisation - In order to add resources to the EJP RD Virtual Platform the organisations that provide the resources need to be registered first. To add an organisation or organisations, the Organisation sheet needs to be filled in. For each organisation, the biobanks, patient registries, guidelines, datasets (which may have associated data services) or data services (with no specific dataset), provided by the organisation, needs to be added.
    1. Biobank - This sheet only needs to be filled in when your organisation provides biobank data. The contact point for this biobank needs to be added if it has not already been added.
    2. Patient registry - This sheet only needs to be filled in when your organisation provides patient registry data. The contact point for this patient registry needs to be added if it has not already been added.
    3. Guideline - This sheet only needs to be filled in when your organisation provides guidelines. The contact point for this guideline needs to be added if it has not already been added.
    4. Dataset - This sheet needs to be filled only when your organisation provides access to 1 or more datasets. This sheet captures details about your dataset(s). However, a single dataset can have different ways in which they are made available to potential users. How a dataset can be accessed is defined in the Distribution sheet.
      1. Distribution - A single dataset can be made available in different ways. I.e., it can be downloaded or it can be accessed online. The contact point for this dataset needs to be added if it has not already been added.
    5. Data Service - If your organisation provides a service for its dataset to browse or search the dataset across different versions of the dataset, this sheet needs to be filled in. The contact point for this data service needs to be added if it has not already been added.
  2. Catalog - If your organisation wants to bundle numerous datasets, data services, biobanks, patient registries or guidelines together under a single title, you need to fill in this sheet. The contact point for this catalog needs to be added if it has not already been added.

Step 3

Export the spreadsheet. We recommend you export the spreadsheet as a tab-delimited (TSV) file. This is because it is very likely that commas will be used in descriptions, addresses etc.