StructureDefinition - Clinical Frailty to support exchange of digital health in Australia

[robeastwood-agency]

Prerequisites

• I have searched open and closed issues to make sure it isn't already requested or reported
• I have written a descriptive issue title

The issue / feature

Change description

Design and develop a set of materials that define a Clinical Information Object for clinical frailty for the electronic exchange of aged care information between healthcare providers, and between healthcare providers and the My Health Record system infrastructure in Australia.

What are the use cases we want to support?

• recording a narrative statement about a person's clinical frailty
• recording an observation of a person's clinical frailty as assessed using a frailty assessment scale
  • one such scale is the Canadian Study of Health & Aging, Clinical Frailty Scale, as endorsed by Clinical Excellence Queensland¹
  • potentially other scales in use across Australia

What it actually enables people to do

How awesome would it be?

Workarounds

Additional context

1. At this early point based on my own preliminary research on the matter, no particular assessment tool/scale seems to be universally adopted across Australia.
2. Clinical frailty information is not currently implemented in the MHR system or explicitly supported in existing Agency specifications, the closest material in nature is that of Problem/Diagnosis (i.e. Condition) but no grading, staging, or assessment elements are supported.

Footnotes

1. Clinical Excellence Queensland | Queensland Health (17 March 2020) Improving the quality, safety and care of older Queenslanders, Identification of frailty. ↩

[robeastwood-agency]

Regarding terminology support for Canadian Study of Health & Aging, Clinical Frailty Scale - this is being worked up via #125