Merge branch 'master' of github.com:elixir-europe/rdmkit

CODEOWNERS

@@ -12,10 +12,10 @@ CONTRIBUTING.md       @floradanna
 
 # Different Sections
 /pages/your_tasks       @floradanna @nazeeefa @marikapop @diana-pilvar
-/pages/your_role       @smza 
+/pages/your_role       @smza @GilOliveira
 /pages/data_life_cycle       @wittigue @floradanna @smza @marikapop
 /pages/tool_assembly       @korbinib @bianchini88
-/pages/your_domain       @bianchini88 @lauportell
+/pages/your_domain       @bianchini88 @lauportell @GilOliveira
 /pages/national_resources       @lauportell @nazeeefa @diana-pilvar
 
 #About

_data/CONTRIBUTORS.yaml

@@ -558,8 +558,9 @@ Polonca Ferk:
 Gil Poiares-Oliveira:
     git: GilOliveira
     orcid: 0000-0003-4638-2879
-    email: gil.oliveira@tecnico.ulisboa.pt
+    email: gpo@biodata.pt
     affiliation: INESC-ID / BioData.pt / ELIXIR-PT
+    role: editor
 Uladzislau Vadadokhau:
     git: uladzislau21
     email: uladzislau.vadadokhau@med.unideb.hu
@@ -609,3 +610,32 @@ Adriano Fonzino:
     git: F0nz0
     orcid: 0009-0009-3325-8554
     affiliation: University of Bari
+Tim Beck:
+    git: tb143
+    email: tim.beck@nottingham.ac.uk
+    orcid: 0000-0002-0292-7972
+    affiliation: University of Nottingham
+Marcus Buchwald:
+    email: marcus.buchwald@uni-heidelberg.de 
+    affiliation: Heidelberg University 
+Philip Quinlan:
+    email: philip.quinlan@nottingham.ac.uk
+    affiliation: University of Nottingham
+Jan Willem Boiten:
+    email: janwillem.boiten@lygature.org
+    affiliation: Lygature 
+Patrick Ruch:
+    email: patrick.ruch@hesge.ch
+    affiliation: Swiss Institute of Bioinformatics 
+Hindrik Kerstens:
+    email: H.H.D.Kerstens-2@prinsesmaximacentrum.nl
+    affiliation: Wageningen University
+Salvador Capella-Gutierrez:
+    email: salvador.capella@bsc.es 
+    affiliation: Barcelona Supercomputing Centre (BSC) 
+Magda Chegkazi:
+    email: magda.chegkazi@elixir-europe.org 
+    affiliation: ELIXIR 
+Arshiya Merchant:
+    email: arshiya.merchant@elixir-europe.org
+    affiliation: ELIXIR 

_data/news.yml

@@ -170,4 +170,8 @@
   date: 2024-03-24
   linked_pr: 1366
   description: By collapsing secondary information we hope to give more attention to the main content of the RDMkit. Together with the improved navigation tiles, multiple bugfixes and some style tweaks, we hope to improve the user experience.
-
+- name: "New page: Health data"
+  date: 2024-03-27
+  linked_pr: 1432
+  description: A new "domain" page for human health data was added. [Discover the page here](health_data).
+

_data/sidebars/data_management.yml

@@ -35,6 +35,8 @@ subitems:
         url: /biomolecular_simulation_data
       - title: Epitranscriptome data
         url: /epitranscriptome_data
+      - title: Health data
+        url: /health_data
       - title: Human data
         url: /human_data
       - title: Human pathogen genomics

_data/tool_and_resource_list.yml

@@ -2506,3 +2506,129 @@
     fairsharing: 32b10v
     tess: MIAME
   url: https://www.fged.org/projects/miame/
+- description: A fully managed REDCap system based in the cloud, provided by nPhase.
+  id: redcap-cloud
+  name: REDCap Cloud
+  url: https://www.redcapcloud.com
+- description: European Commission's official multilingual online survey-management system built for the creation and publishing of globally accessible forms.
+  id: eu-survey
+  name: EU Survey
+  url: https://ec.europa.eu/eusurvey
+- description: A free and open source platform to develop and publish online surveys.
+  id: limesurvey
+  name: LimeSurvey
+  url: https://github.com/LimeSurvey/LimeSurvey
+- description: Commercial online survey tool.
+  id: alchemer
+  name: Alchemer
+  url: https://www.alchemer.com
+- description: Commercial online survey tool.
+  id: jotform
+  name: Jotform
+  url: https://www.jotform.com
+- description: A standard used for health care data exchange.
+  id: hl7-fhir
+  name: HL7 FHIR
+  url: https://www.hl7.org/fhir/
+- description: A minimal set of clinical research FHIR resources and elements in an EHR that can be utilised in an interoperable and consistent manner for clinical research.
+  id: vulcan
+  name: Real World Data for Clinical Research (Vulcan)
+  registry:
+    biotools: vulcan
+  url: https://build.fhir.org/ig/HL7/vulcan-rwd/
+- description: Guidance on how FHIR can be used for supporting FAIR health data.
+  id: fhir4fair
+  name: FHIR4FAIR
+  url: https://build.fhir.org/ig/HL7/fhir-for-fair/
+- description: A standard designed by the European Committee for Standardization to define a information architecture for communicating part or all of the EHR of a single patient between EHR systems or between EHR systems and a centralised EHR data repository.
+  id: iso13606
+  name: ISO 13606
+  url: https://www.iso.org/standard/67868.html
+- description: Recommended by the European Commission as the format to be used for the exchange of EHR data for cross-border healthcare.
+  id: eehrxf
+  name: European Electronic Health Record Exchange Format (EEHRxF)
+  url: https://www.x-ehealth.eu/eehrxf/
+- description: Domain model for data interchange that enables semantic interoperability and intends to integrate biomedical, clinical research and routine healthcare data.
+  id: isodis-14199
+  name: ISO/DIS 14199
+  url: https://www.iso.org/standard/83433.html
+- description: Non-profit organisation that publishes technical standards for an EHR platform along with domain‑developed clinical models to define content.
+  id: openehr
+  name: OpenEHR
+  registry:
+    fairsharing: 3fc9zf
+  url: https://openehr.org
+- description: Consortium which defines several open standards for regulatory approval and case report forms in particular in the context of clinical trials meant for submission to FDA and EMA.
+  id: cdisc
+  name: Clinical Data Interchange Standards Consortium (CDISC)
+  url: https://www.cdisc.org
+- description: A CDISC Foundational Standard that defines dataset and metadata standards.
+  id: adam
+  name: Analysis Data Model for data and metadata of clinical trial statistical analysis (ADaM)
+  registry:
+    biotools: adam
+  url: https://www.cdisc.org/standards/foundational/adam
+- description: A CDISC Data Exchange Standard that lets technology vendors implement tools that support a “write once, use many times” solution based on XML.
+  id: ctr-xml
+  name: Clinical Trial Registry-XML (CTR-XML)
+  url: https://www.cdisc.org/standards/data-exchange/ctr-xml
+- description: A CDISC Data Exchange Standard that  is a vendor-neutral, platform-independent format for exchanging and archiving clinical and translational research data, along with their associated metadata, administrative data, reference data, and audit information.
+  id: odm-xml
+  name: Operational Data Model-XML (ODM-XML)
+  url: https://www.cdisc.org/standards/data-exchange/odm
+- description: A CDISC Foundational Standard that provides a standard for organizing and formatting data to streamline processes in collection, management, analysis and reporting.
+  id: sdtm
+  name: Study Data Tabulation Model (SDTM)
+  url: https://www.cdisc.org/standards/foundational/sdtm
+- description: Open community standard for observational health care data obtained from health records.
+  id: cdm
+  name: OMOP Common Data Model
+  registry:
+    tess: OMOP Common Data Model
+  url: https://ohdsi.github.io/CommonDataModel/
+- description: A UML-based logical health information model defined by the Open Group, intended to achieve interoperability between multiple healthcare standards and protocols.
+  id: fhim
+  name: Federated Health Information Model (FHIM)
+  url: https://fhim.org/fhim-model
+- description: Defines data elements, the relationships between such data elements and terminologies for detailed small, reusable clinical models.
+  id: iso139722022
+  name: ISO 13972:2022
+  url: https://www.iso.org/standard/79498.html
+- description: REDCap feature which allows a REDCap project to interact with an EHR system and pull EHR data into REDCap.
+  id: cdis
+  name: Clinical Data Interoperability Services (CDIS)
+  url: https://projectredcap.org/software/cdis/
+- description: Open-source tool to map datasets to the OMOP CDM.
+  id: carrot-mapper
+  name: Convenient And Reusable Rapid OMOP Transformer (CaRROT-Mapper)
+  url: https://github.com/Health-Informatics-UoN/CaRROT-Mapper
+- description: Repository of ontologies for use with the OMOP CDM.
+  id: ohdsi-athena
+  name: OHDSI Athena
+  url: https://athena.ohdsi.org/search-terms/start
+- description: Codes for diseases, signs and symptoms, abnormal findings, complaints, social circumstances, and external causes of injury or diseases. Replaced by ICD-11 on 1/1/2022.
+  id: icd10
+  name: International Classification of Diseases 10th Revision (ICD-10)
+  registry:
+    biotools: icd-10
+  url: https://icd.who.int/browse10/2019/en
+- description: Replaces the ICD-10 as the global standard for recording health information and causes of death. It is developed by the World Health Organization and is annually updated.
+  id: icd11
+  name: International Classification of Diseases 11th Revision (ICD-11)
+  registry:
+    biotools: icd-11
+  url: https://icd.who.int/en
+- description: Terminology standard for health measurements, observations, and documents.
+  id: loinc
+  name: Logical Observation Identifiers Names and Codes (LOINC)
+  url: https://loinc.org
+- description: Terminology standard consisting of codes, terms, synonyms and definitions used in clinical documentation and reporting.
+  id: snomed-ct
+  name: Systematized Nomenclature of Medicine - Clinical Terms (SNOMED-CT)
+  url: https://www.snomed.org
+- description: Standardised vocabulary of phenotypic abnormalities encountered in human disease.
+  id: hpo
+  name: Human Phenotype Ontology (HPO)
+  registry:
+    biotools: hpo
+  url: https://hpo.jax.org/app/

pages/about/editorial_board.md

@@ -4,7 +4,7 @@ title: Editorial board
 
 ## Meet the editorial board members
 
-{% include contributor-carousel-selection.html custom="Bert Droesbeke, Carole Goble, Flora D'Anna, Frederik Coppens, Munazah Andrabi, Ulrike Wittig, Laura Portell Silva, Martin Cook, Korbinian Bösl, Federico Bianchini, Nazeefa Fatima, Ishwar Chandramouliswaran, Diana Pilvar, Marina Popleteeva" %}
+{% include contributor-carousel-selection.html custom="Bert Droesbeke, Carole Goble, Flora D'Anna, Frederik Coppens, Munazah Andrabi, Ulrike Wittig, Laura Portell Silva, Martin Cook, Korbinian Bösl, Federico Bianchini, Nazeefa Fatima, Ishwar Chandramouliswaran, Diana Pilvar, Marina Popleteeva, Gil Poiares-Oliveira" %}
 
 ## Join as editorial board member