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Patient Data Use Agreement (DRAFT)

This repository contains the current draft of the Patient Data Use Agreement (PDUA) for data stored within the Patient Data Manager.

This document is a draft model agreement. It is intended to establish a relationship between an individual and a data management service entity for the purposes of managing the individual’s complete, longitudinal health data on the individual’s behalf and provides complete control over the aggregated copy of the patient’s data to the patient.

Views, opinions, comments, recommendations, conclusions or other statements contained in this document do not, and are not intended to, constitute legal advice or opinion, are not expressed by counsel for MITRE and do not represent the views of MITRE's Office of General Counsel. Instead, all information, content, and materials available in this document are for general informational purposes only. Readers of this document should contact their attorney to obtain advice with respect to any particular legal matter. No reader or user of this document should act or refrain from acting on the basis of information in this site without first seeking legal advie from counsel in the relevant jurisdiction. Only your individual attorney can provide assurances that the information contained herein, and your interpretation of it, is applicable or appropriate to your particular situation. Use of, or access to, this document does not create an attorney-client relationship between the reader or user and website authors or contributors and their respective employers.

Examples

Full version of the Patient Data Use Agreement.

Abbreviated, graphical version of the Patient Data Use Agreement that's written for a 5th grade reading level and is being adopted by the Patient Data Manager.

Adopt PDUA

Contact us if your organization is interested in adopting the Patient Data Use Agreement.

Contribute

We encourage you to contribute to the Patient Data Use Agreement!
See the Contribute guidelines for how to proceed.

Code of Conduct

Help us keep the Patient Data Use Agreement open and inclusive.
Please read and follow our Code of Conduct.

About the Team

The MITRE Corporation

The MITRE Corporation is a not-for-profit organization working in the public interest that operates federally funded research and development centers to provide innovative solutions to national problems.

License

Licensed under the Apache License, Version 2.0 (the "License"); you may not use this file except in compliance with the License. You may obtain a copy of the License at

http://www.apache.org/licenses/LICENSE-2.0

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Patient Data Use Agreement for the Patient Data Manager

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