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Handbook for PH registries to OMOP CDM conversion

Welcome to the Handbook!

We believe that sharing methodologies and experiences could help avoid duplication of effort, shape future guidelines, and foster collaborations. So firstly, we published a paper summarizing our experience of mapping three PH registry data sets to the OMOP CDM v5.3.1 [1]. Here in the next step, we share practical approaches and techniques laying down a solid foundation for researchers wishing to convert PH registry data to the OMOP CDM.

The guidelines themselves are in a wiki, whereas code and custom vocab examples can be found in the current repository.

References

[1] Biedermann P, Ong R, Davydov A, Orlova A, Solovyev P, Sun H, Wetherill G, Brand M, Didden EM. Standardizing registry data to the OMOP Common Data Model: experience from three pulmonary hypertension databases. BMC Med Res Methodol. 2021 Nov 2;21(1):238. doi: 10.1186/s12874-021-01434-3. PMID: 34727871; PMCID: PMC8565035.

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