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Is the data on sex and age available anywhere? #11

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macrophyte opened this issue Mar 27, 2020 · 21 comments
Closed

Is the data on sex and age available anywhere? #11

macrophyte opened this issue Mar 27, 2020 · 21 comments

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@macrophyte
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No description provided.

@Mantissa-23
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Also interested in this.

@CBG-63
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CBG-63 commented Mar 27, 2020

This will likely not be available, as it may violate HIPAA laws. While some of these have been temporarily waived for doctors to treat patients in other states, etc., it likely doesn't apply to the public.

@girlinamovie
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Agree with CBG-63

@sareeneng
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sareeneng commented Mar 27, 2020

HIPAA identifiers - https://www.luc.edu/its/aboutits/itspoliciesguidelines/hipaainformation/18hipaaidentifiers/

Sex is not an identifier
Exact age is not an identifier if <= 89 years old. These patients could be all binned together as >89.
It cannot be linked to county-level data, but can be linked to state-level data.

Patient-level data is highly important. Right now we have no ways of risk-stratification (speaking as a PICU physician in New York), and all the publicly available data is focused towards epidemiology which doesn't help us take care of patients that are currently infected in the hospital.

@thoughtafter
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No one is releasing individual case data as far as I am aware. The issue for age is that states are binning ages differently so it's not very usable data.

@wesg52
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wesg52 commented Mar 27, 2020

It would be worth joining this with census data by county to identify high risk clusters i.e. those counties with higher than average elderly populations.

@timriffe
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No one is releasing individual case data as far as I am aware. The issue for age is that states are binning ages differently so it's not very usable data.

Can you give some pointers to states publishing cases and deaths in binned ages?

@thoughtafter
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thoughtafter commented Mar 27, 2020

No one is releasing individual case data as far as I am aware. The issue for age is that states are binning ages differently so it's not very usable data.

Can you give some pointers to states publishing cases and deaths in binned ages?

OR (under "Demographic and Hospital Information"): https://govstatus.egov.com/OR-OHA-COVID-19
WA: https://www.doh.wa.gov/Emergencies/Coronavirus

@Joe-Wasserman
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There are line lists of individual cases with demographic information (as much as available) being compiled here: https://github.com/beoutbreakprepared/nCoV2019

@paoist
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paoist commented Mar 28, 2020

OR:
https://govstatus.egov.com/OR-OHA-COVID-19
WA: https://www.doh.wa.gov/Emergencies/Coronavirus

Interesting, both have more female than male deaths.

Seems important that aggregated gender statistics are made available nation wide.

@amcdavid
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I am also very interested in finding age-stratified data, especially of deaths. It seems almost negligent to compare incidence of death between time or place without this. The idea of joining to census data is interesting, and would be most appropriate if infection is independent of age. We know this isn't true on a micro level because nursing homes, etc, result in inhomogeneity. Any other ideas?

@paoist
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paoist commented Mar 29, 2020 via email

@Otteholt
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Thoughtafter states

No one is releasing individual case data as far as I am aware. The issue for age is that states are binning ages differently so it's not very usable data.

As a workaround to this issue it seems like the average age of a person’s assigned bin could be determined and then utilized. These values could be obtained for patients in all states.

Detailed age resolution would be lost, but the bins used in each state are similar enough to provide valuable insights.

Could this be provided NYT?

@Dawnteach
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Hi, not sure if this will help but Georgia is reporting actual age data, sex and even underlying conditions in general. Maybe that will clear the way for you to do the same in New York. Thinking of everyone since I have a daughter who lives in Manhattan!

https://dph.georgia.gov/covid-19-daily-status-report

@timriffe
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Santa Clara county gives a dashboard with 10-year age groups for cases and deaths:
https://www.sccgov.org/sites/phd/DiseaseInformation/novel-coronavirus/Pages/dashboard.aspx

@shoffer
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shoffer commented Apr 1, 2020

It always fascinated me when people toss around a law or regulation like HIPAA or PIA and do not ever bother to read or understand it.
Thankfully, some of you do and correct for this.

The data is worthless without certain attributes.

Age and underlying conditions are critical to understanding what is going on. Without at least age, the reports are a meaningless list that does nothing but allow for panic or complacency. It fosters the extremes.
Here are some other attributes that are critical.
Duration of illness
Severity of symptoms
List of symptoms
Recovery
Recurrence number( per person)

Most reports are generalities that provide no value...just a map of giant red like blood as if the world is ending.

Glad some areas are being more transparent about it such as the references Santa Clara( I have not validated.

Rant over.
Stay well everyone.

@timriffe
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timriffe commented Apr 2, 2020

Ohio now posting data with sex, age groups, and even some other variables, very nice.
https://coronavirus.ohio.gov/wps/portal/gov/covid-19/home/dashboard

@brendantodaro
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I compiled some of the available state-level data (FL, GA, MI, NYC, OH, OR, WA) on death rates by age here: https://github.com/brendantodaro/US-COVID-deaths-by-age/blob/master/README.md

@shoffer
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shoffer commented Apr 5, 2020 via email

@shoffer
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shoffer commented Apr 5, 2020 via email

@shoffer
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shoffer commented Apr 10, 2020

Just another question: Has anyone done any side-by-side comparison of the details fo cases and deaths, with comprable demographic and associated data for SARS, Swine Flu, Bird Flu or any Seasonal Flu? Without context and comparison, it is hard to see/make judgement on where this pandemic lines up in contrast to others

@tiffehr tiffehr closed this as completed Apr 4, 2023
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