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<!DOCTYPE html>
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<head>
<meta charset="utf-8" />
<title>Open Science-Compatible Consent Forms</title>
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<h1><a href="./">Frankfurt Open Science Initiative </a></h1>
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<li><a href="./pages/resources.html">Resources</a></li>
<li><a href="./">Welcome</a></li>
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<h1 class="entry-title">
<a href="./consent-forms.html" rel="bookmark"
title="Permalink to Open Science-Compatible Consent Forms">Open Science-Compatible Consent Forms</a></h1>
</header>
<div class="entry-content">
<footer class="post-info">
<span>Fri 05 October 2018</span>
<span>| tags: <a href="./tag/forms.html">forms</a><a href="./tag/data-sharing.html">data-sharing</a></span>
</footer><!-- /.post-info --> <h1>Data Sharing, Privacy and Consent</h1>
<h2>Informed Consent</h2>
<p>According to the <a href="https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/">Declaration of
Helsinki</a>,</p>
<blockquote>
<p><strong>§32</strong> For medical research using identifiable human material or data, such as
research on material or data contained in biobanks or similar
repositories, physicians must seek informed consent for its collection,
storage and/or reuse. There may be exceptional situations where consent would
be impossible or impracticable to obtain for such research. In such situations
the research may be done only after consideration and approval of a
research ethics committee.</p>
</blockquote>
<p>Most recent <span class="caps">EU</span> laws also suggest a strong emphasis on informed consent, although <a href="https://datenschutz.hessen.de/pressemitteilungen/gesetz-zur-anpassung-des-hessischen-datenschutzrechts">Hesse state
laws</a>
grant much more freedom to academic research.</p>
<p>Inspired by the <a href="https://open-brain-consent.readthedocs.io/en/master/ultimate.html">Ultimate Consent Forms</a>,
we have developed a general consent form hopefully sufficient to cover most investigations relevant to
conducting psychological and neurocognitive experiments.</p>
<p>You can download the form
<a href="https://www.dropbox.com/s/chapn9ss0wpz6qt/Probandeninformation_Flexstudie_Teil2.pdf?dl=0">here</a>.</p>
<h2>Appropriate Formats</h2>
<p>A <a href="https://github.com/jtleek/datasharing">guide for sharing data</a> by Jeff Leek’s group
gives a detailed overview for data sharing best practices.</p>
<p>However, for neuroimaging or other complex data, consider the
<a href="http://bids.neuroimaging.io"><span class="caps">BIDS</span></a> format.</p>
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</article>
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<h2>links</h2>
<ul>
<li><a href="osf.io">Open Science Foundation</a></li>
</ul>
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<h2>associates</h2>
<ul>
<li><a href="https://openscienceinitiativeuniversitymarburg.github.io">Open Science Initiative University of Marburg</a></li>
<li><a href="https://www.goethe-university-frankfurt.de/">Goethe University Frankfurt</a></li>
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