EuroPython · egeakman · Apr 13, 2025 · Apr 13, 2025
diff --git a/scripts/download-data.py b/scripts/download-data.py
@@ -16,9 +16,9 @@
 ROOT = pathlib.Path(__file__).parents[1]
 
 
-SESSIONS_URL = "https://programapi24.europython.eu/2024/sessions.json"
-SPEAKERS_URL = "https://programapi24.europython.eu/2024/speakers.json"
-SCHEDULE_DATA = "https://programapi24.europython.eu/2024/schedule.json"
+SESSIONS_URL = "https://static.europython.eu/programme/ep2024/releases/current/sessions.json"
+SPEAKERS_URL = "https://static.europython.eu/programme/ep2024/releases/current/speakers.json"
+SCHEDULE_DATA = "https://static.europython.eu/programme/ep2024/releases/current/schedule.json"
 
 
 def write_mdx(data: dict[str, Any], output_dir: pathlib.Path, content_key: str) -> None:

diff --git a/src/content/days/2024-07-08.json b/src/content/days/2024-07-08.json
diff --git a/src/content/days/2024-07-09.json b/src/content/days/2024-07-09.json
diff --git a/src/content/days/2024-07-10.json b/src/content/days/2024-07-10.json
diff --git a/src/content/days/2024-07-11.json b/src/content/days/2024-07-11.json
diff --git a/src/content/days/2024-07-12.json b/src/content/days/2024-07-12.json
diff --git a/src/content/sessions/39V7BK.mdx b/src/content/sessions/39V7BK.mdx
@@ -37,7 +37,7 @@ speakers:
 - elvis-pranskevichus
 start: '2024-07-12T11:20:00+02:00'
 title: 'Edges of Python: Three Radical Python Hacks for Fun and Profit'
-track: Software Engineering & Architecture
+track: Software Engineering & Architecture (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/edges-of-python-three-radical-python-hacks-for-fun-and-profit
 youtube_url: https://youtube.com/watch?v=i-rZlnfGUaE

diff --git a/src/content/sessions/3XXR79.mdx b/src/content/sessions/3XXR79.mdx
@@ -32,7 +32,7 @@ speakers:
 - sheena-o-connell
 start: '2024-07-10T10:45:00+02:00'
 title: Learning to code in the age of AI
-track: Software Engineering & Architecture
+track: Software Engineering & Architecture (2024)
 tweet: 'Across the industry, programmers of all levels are embracing AI and LLMs.
   But: it''s still worthwhile to learn the foundations of coding. And there''s a risk:
   some learners are using AIs as footguns and limiting their own'

diff --git a/src/content/sessions/7CJVKM.mdx b/src/content/sessions/7CJVKM.mdx
@@ -8,7 +8,7 @@ next_session: HX9ZWH
 prev_session: XLGEHC
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/7CJVKM/resources/EuroPython_2024_Streamlining_Testing_in_a_L_dL1DHRY.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/7CJVKM/resources/EuroPython_2024_Streamlining_Testing_in_a_L_dL1DHRY.pdf
 room: Terrace 2B
 session_type: Talk
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - jimmy-lai
 start: '2024-07-12T14:00:00+02:00'
 title: Streamlining Testing in a Large Python Codebase
-track: DevOps and Infrastructure (Cloud & Hardware)
+track: DevOps and Infrastructure (Cloud & Hardware) (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/streamlining-testing-in-a-large-python-codebase
 youtube_url: https://youtube.com/watch?v=SkbugLOeyKk

diff --git a/src/content/sessions/7DF7VC.mdx b/src/content/sessions/7DF7VC.mdx
@@ -8,7 +8,7 @@ next_session: M9TMMQ
 prev_session: WP8MXM
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/7DF7VC/resources/Deconstructing_the_text_embedding_models_Eu_X7LWdyg.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/7DF7VC/resources/Deconstructing_the_text_embedding_models_Eu_X7LWdyg.pdf
 room: North Hall
 session_type: Talk (long session)
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - kacper-lukawski
 start: '2024-07-10T12:10:00+02:00'
 title: Deconstructing the text embedding models
-track: 'PyData: Deep Learning, NLP, CV'
+track: 'PyData: Deep Learning, NLP, CV (2024)'
 tweet: Tokenizers are the most underrated parts of not only LLMs but also text embedding
   models used to build semantic search apps, i.e., RAG. @LukawskiKacper will describe
   their crucial role and show how to control them!

diff --git a/src/content/sessions/7F87N3.mdx b/src/content/sessions/7F87N3.mdx
@@ -8,7 +8,7 @@ next_session: 9DSSHZ
 prev_session: EN98JL
 resources:
 - description: Mastering Design Patterns presentation
-  resource: https://pretalx.com/media/europython-2024/submissions/7F87N3/resources/Mastering_Design_Patterns_KGrKlw6.pptx
+  resource: https://programme.europython.eu/media/europython-2024/submissions/7F87N3/resources/Mastering_Design_Patterns_KGrKlw6.pptx
 room: Terrace 2A
 session_type: Talk
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - petr-balogh
 start: '2024-07-11T14:35:00+02:00'
 title: 'Mastering Design Patterns: Crafting Elegant Solutions with a Confidence'
-track: Software Engineering & Architecture
+track: Software Engineering & Architecture (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/mastering-design-patterns-crafting-elegant-solutions-with-a-confidence
 youtube_url: https://youtube.com/watch?v=t5HlKbKo-Lo

diff --git a/src/content/sessions/7GRP3T.mdx b/src/content/sessions/7GRP3T.mdx
@@ -8,7 +8,7 @@ next_session: VBHMEL
 prev_session: A3EWQU
 resources:
 - description: Presentation slides
-  resource: https://pretalx.com/media/europython-2024/submissions/7GRP3T/resources/The_Art_of_the_Pull_Request_EuroPython_Prag_4jlstYa.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/7GRP3T/resources/The_Art_of_the_Pull_Request_EuroPython_Prag_4jlstYa.pdf
 room: Terrace 2B
 session_type: Talk
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - ben-lomax
 start: '2024-07-10T14:00:00+02:00'
 title: The Art of the Pull Request
-track: Software Engineering & Architecture
+track: Software Engineering & Architecture (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/the-art-of-the-pull-request
 youtube_url: https://youtube.com/watch?v=2upWetU_vUc

diff --git a/src/content/sessions/7PEXTK.mdx b/src/content/sessions/7PEXTK.mdx
@@ -8,7 +8,7 @@ next_session: BUT9E7
 prev_session: 8FY9BC
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/7PEXTK/resources/EP2024_1dHs91s.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/7PEXTK/resources/EP2024_1dHs91s.pdf
 room: Forum Hall
 session_type: Talk (long session)
 sessions_after:
@@ -34,7 +34,7 @@ speakers:
 - radoslav-georgiev
 start: '2024-07-11T10:30:00+02:00'
 title: 'Rapid Prototyping & Proof of Concepts: Django is all we need'
-track: Python Libraries & Tooling
+track: Python Libraries & Tooling (2024)
 tweet: We know Django is great for building mature & long-lasting applications.  In
   this talk, we'll show that Django's actually also great for rapid prototyping &
   building proof of concepts.

diff --git a/src/content/sessions/7XMZGV.mdx b/src/content/sessions/7XMZGV.mdx
@@ -41,7 +41,7 @@ speakers:
 - arthur-pastel
 start: '2024-07-10T14:35:00+02:00'
 title: 'Demystifying AsyncIO: Building Your Own Event Loop in Python'
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: Explore AsyncIO's core by building a custom event loop in Python to power a
   FastAPI application, unveiling the internal mechanics behind Python's asynchronous
   programming.

diff --git a/src/content/sessions/7Z8LFA.mdx b/src/content/sessions/7Z8LFA.mdx
@@ -8,7 +8,7 @@ next_session: 7XMZGV
 prev_session: G3PHLZ
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/7Z8LFA/resources/slides_28H2Ov2.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/7Z8LFA/resources/slides_28H2Ov2.pdf
 room: Forum Hall
 session_type: Talk
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - jakub-beranek
 start: '2024-07-10T14:00:00+02:00'
 title: Writing Python like it's Rust - more robust code with type hints
-track: Software Engineering & Architecture
+track: Software Engineering & Architecture (2024)
 tweet: 'The many benefits of type hints in Python: leveraging types to gain more confidence
   in the correctness of our code and to improve development speed.'
 website_url: https://ep2024.europython.eu/session/writing-python-like-it-s-rust-more-robust-code-with-type-hints

diff --git a/src/content/sessions/833AAG.mdx b/src/content/sessions/833AAG.mdx
@@ -39,7 +39,7 @@ speakers:
 - jeremiah-paige
 start: '2024-07-12T11:20:00+02:00'
 title: You are sharing your code wrong (and what to do about it)
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: learn how and why to give your users a package, not a puzzle
 website_url: https://ep2024.europython.eu/session/you-are-sharing-your-code-wrong-and-what-to-do-about-it
 youtube_url: https://youtube.com/watch?v=AMRHRNDVhEg

diff --git a/src/content/sessions/89RTNU.mdx b/src/content/sessions/89RTNU.mdx
@@ -34,7 +34,7 @@ speakers:
 - naomi-ceder
 start: '2024-07-12T14:35:00+02:00'
 title: The truth about objects
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/the-truth-about-objects
 youtube_url: https://youtube.com/watch?v=T6WvSP5REow

diff --git a/src/content/sessions/8FKHES.mdx b/src/content/sessions/8FKHES.mdx
@@ -8,7 +8,7 @@ next_session: 89RTNU
 prev_session: 9VFEQE
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/8FKHES/resources/PythonInParallel_6ZSpTQ6.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/8FKHES/resources/PythonInParallel_6ZSpTQ6.pdf
 room: Forum Hall
 session_type: Talk
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - samet-yaslan
 start: '2024-07-12T14:00:00+02:00'
 title: 'Python in Parallel: Sub-Interpreters vs. NoGIL vs. Multiprocessing'
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/python-in-parallel-sub-interpreters-vs-nogil-vs-multiprocessing
 youtube_url: https://youtube.com/watch?v=HdTtJKevxfQ

diff --git a/src/content/sessions/8FY9BC.mdx b/src/content/sessions/8FY9BC.mdx
@@ -28,7 +28,7 @@ speakers:
 - tereza-iofciu
 start: '2024-07-11T09:15:00+02:00'
 title: Why should we all be hyped about inclusive leadership?
-track: Education, Community & Diversity
+track: Education, Community & Diversity (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/why-should-we-all-be-hyped-about-inclusive-leadership
 youtube_url: https://youtube.com/watch?v=wHU-Mi_phJc

diff --git a/src/content/sessions/8QXTES.mdx b/src/content/sessions/8QXTES.mdx
@@ -32,7 +32,7 @@ speakers:
 - daniel-goldfarb
 start: '2024-07-11T16:05:00+02:00'
 title: Creating Your Own Extensions for JupyterLab
-track: 'PyData: Research & Applications'
+track: 'PyData: Research & Applications (2024)'
 tweet: Learn to add features to JupyterLab by creating your own JupyterLab extensions.
 website_url: https://ep2024.europython.eu/session/creating-your-own-extensions-for-jupyterlab
 youtube_url: https://youtube.com/watch?v=WPg9S8o9kBI

diff --git a/src/content/sessions/9DSSHZ.mdx b/src/content/sessions/9DSSHZ.mdx
@@ -8,7 +8,7 @@ next_session: 8QXTES
 prev_session: 7F87N3
 resources:
 - description: slides deck
-  resource: https://pretalx.com/media/europython-2024/submissions/9DSSHZ/resources/EuroPython_2024_Caching_in_Jupyter_Notebook_mNaJj0Q.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/9DSSHZ/resources/EuroPython_2024_Caching_in_Jupyter_Notebook_mNaJj0Q.pdf
 room: Terrace 2A
 session_type: Talk
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - lauris-jullien
 start: '2024-07-11T15:30:00+02:00'
 title: Caching for Jupyter Notebooks
-track: 'PyData: Software Packages & Jupyter'
+track: 'PyData: Software Packages & Jupyter (2024)'
 tweet: 10X your workflow by caching your Jupyter Notebook outputs.  Developers and
   data scientists, no more waiting around for your expensive cells to re-run.
 website_url: https://ep2024.europython.eu/session/caching-for-jupyter-notebooks

diff --git a/src/content/sessions/9G8GWM.mdx b/src/content/sessions/9G8GWM.mdx
@@ -38,7 +38,7 @@ speakers:
 - laysa-uchoa
 start: '2024-07-11T14:00:00+02:00'
 title: Is it me or Python memory management?
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/is-it-me-or-python-memory-management
 youtube_url: https://youtube.com/watch?v=TVJZATcTS_U

diff --git a/src/content/sessions/9VFEQE.mdx b/src/content/sessions/9VFEQE.mdx
@@ -39,7 +39,7 @@ speakers:
 - bojan-miletic
 start: '2024-07-12T12:30:00+02:00'
 title: 'Async Await: Mastering Python''s Time-Bending Tricks'
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/async-await-mastering-python-s-time-bending-tricks
 youtube_url: https://youtube.com/watch?v=HouWsGsTRgE

diff --git a/src/content/sessions/9XFSMS.mdx b/src/content/sessions/9XFSMS.mdx
@@ -38,7 +38,7 @@ speakers:
 - torsten-zielke
 start: '2024-07-11T16:05:00+02:00'
 title: 'Python Unplugged: Mining for Hidden ''Batteries'
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: "Ever explored the hidden gems in Python's standard library? My #EuroPython\
   \ talk unveils lesser-known 'batteries' like the new batch function, unique collections,\
   \ and more! Dive into Python's treasure trove with us! #\U0001F40D"

diff --git a/src/content/sessions/A3E3XE.mdx b/src/content/sessions/A3E3XE.mdx
@@ -31,7 +31,7 @@ speakers:
 - bilge-yucel
 start: '2024-07-10T13:00:00+02:00'
 title: Building End-to-End Reliable RAG Applications
-track: 'PyData: LLMs'
+track: 'PyData: LLMs (2024)'
 tweet: ''
 website_url: https://ep2024.europython.eu/session/building-end-to-end-reliable-rag-applications
 youtube_url: null

diff --git a/src/content/sessions/A3EWQU.mdx b/src/content/sessions/A3EWQU.mdx
@@ -39,7 +39,7 @@ speakers:
 - sayak-paul
 start: '2024-07-10T12:10:00+02:00'
 title: State-of-the-art image generation for the masses with Diffusers
-track: 'PyData: Deep Learning, NLP, CV'
+track: 'PyData: Deep Learning, NLP, CV (2024)'
 tweet: ''
 website_url: https://ep2024.europython.eu/session/state-of-the-art-image-generation-for-the-masses-with-diffusers
 youtube_url: https://youtube.com/watch?v=Z1FPAweAbNI

diff --git a/src/content/sessions/A3QRK3.mdx b/src/content/sessions/A3QRK3.mdx
@@ -8,7 +8,7 @@ next_session: WKLEEW
 prev_session: SHUQ9L
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/A3QRK3/resources/Counting_Down_for_CRA_tWfUsH9.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/A3QRK3/resources/Counting_Down_for_CRA_tWfUsH9.pdf
 room: Terrace 2B
 session_type: Talk
 sessions_after:
@@ -40,7 +40,7 @@ speakers:
 - deb-nicholson
 start: '2024-07-11T11:55:00+02:00'
 title: Counting down for CRA - updates and expectations
-track: Security
+track: Security (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/counting-down-for-cra-updates-and-expectations
 youtube_url: https://youtube.com/watch?v=ZyC7c5fxr3A

diff --git a/src/content/sessions/ALVMH3.mdx b/src/content/sessions/ALVMH3.mdx
@@ -39,7 +39,7 @@ speakers:
 - michal-rokita
 start: '2024-07-11T14:00:00+02:00'
 title: Multimedia processing with FFMpeg and Python
-track: Python Libraries & Tooling
+track: Python Libraries & Tooling (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/multimedia-processing-with-ffmpeg-and-python
 youtube_url: https://youtube.com/watch?v=J9PhTL9NnxM

diff --git a/src/content/sessions/AVNAPX.mdx b/src/content/sessions/AVNAPX.mdx
@@ -27,7 +27,7 @@ speakers:
 - manoj-pandey
 start: '2024-07-08T13:45:00+02:00'
 title: 'Parallelism, Concurrency, and AsyncIO: A Comprehensive Guide for Beginners'
-track: Python Internals & Ecosystem
+track: Python Internals & Ecosystem (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/parallelism-concurrency-and-asyncio-a-comprehensive-guide-for-beginners
 youtube_url: null

diff --git a/src/content/sessions/B8SZMM.mdx b/src/content/sessions/B8SZMM.mdx
@@ -39,7 +39,7 @@ speakers:
 - martin-fleischmann
 start: '2024-07-10T14:00:00+02:00'
 title: GeoPandas 1.0 and beyond
-track: 'PyData: Software Packages & Jupyter'
+track: 'PyData: Software Packages & Jupyter (2024)'
 tweet: ''
 website_url: https://ep2024.europython.eu/session/geopandas-1-0-and-beyond
 youtube_url: https://youtube.com/watch?v=SgQA_ac2AZk

diff --git a/src/content/sessions/BCCBHN.mdx b/src/content/sessions/BCCBHN.mdx
@@ -27,7 +27,7 @@ speakers:
 - radomir-dopieralski
 start: '2024-07-09T09:30:00+02:00'
 title: Learn Python by Making a Console Game
-track: Education, Community & Diversity
+track: Education, Community & Diversity (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/learn-python-by-making-a-console-game
 youtube_url: null

diff --git a/src/content/sessions/BUH9SD.mdx b/src/content/sessions/BUH9SD.mdx
@@ -35,7 +35,7 @@ speakers:
 - maxim-danilov
 start: '2024-07-11T13:00:00+02:00'
 title: "\xB5Django 2.0, an asynchronous microservices technique."
-track: Web technologies
+track: Web technologies (2024)
 tweet: Django - the new trend in creating asynchronous Python microservices or the
   oldest one.
 website_url: https://ep2024.europython.eu/session/mdjango-2-0-an-asynchronous-microservices-technique

diff --git a/src/content/sessions/BUT9E7.mdx b/src/content/sessions/BUT9E7.mdx
@@ -37,7 +37,7 @@ speakers:
 - samuel-colvin
 start: '2024-07-11T11:20:00+02:00'
 title: FastUI - panacea or pipe dream?
-track: Web technologies
+track: Web technologies (2024)
 tweet: FastUI - panacea or pipe dream? Are web interfaces defined in Python a genius
   idea, a complete folly, or (like most technologies) a good fit for some use cases
   but not all?

diff --git a/src/content/sessions/C9KSKY.mdx b/src/content/sessions/C9KSKY.mdx
@@ -8,7 +8,7 @@ next_session: P93P8V
 prev_session: WQGUTP
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/C9KSKY/resources/How_to_sell_a_big_refactor_or_rewrite_to_th_ahVjf5K.pdf
+  resource: https://programme.europython.eu/media/europython-2024/submissions/C9KSKY/resources/How_to_sell_a_big_refactor_or_rewrite_to_th_ahVjf5K.pdf
 room: South Hall 2A
 session_type: Talk (long session)
 sessions_after:
@@ -34,7 +34,7 @@ speakers:
 - ivett-ordog
 start: '2024-07-10T10:45:00+02:00'
 title: How to sell a big refactor or rewrite to the business?
-track: Software Engineering & Architecture
+track: Software Engineering & Architecture (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/how-to-sell-a-big-refactor-or-rewrite-to-the-business
 youtube_url: https://youtube.com/watch?v=XLwZVRTSRGY

diff --git a/src/content/sessions/CCZPAF.mdx b/src/content/sessions/CCZPAF.mdx
@@ -8,7 +8,7 @@ next_session: HBDW93
 prev_session: LXYWXR
 resources:
 - description: Slides
-  resource: https://pretalx.com/media/europython-2024/submissions/CCZPAF/resources/Adventures_in_Not_Testing.slides_f5TUwWD.html
+  resource: https://programme.europython.eu/media/europython-2024/submissions/CCZPAF/resources/Adventures_in_Not_Testing.slides_f5TUwWD.html
 room: North Hall
 session_type: Talk
 sessions_after:
@@ -39,7 +39,7 @@ speakers:
 - andy-fundinger
 start: '2024-07-12T11:20:00+02:00'
 title: Adventures in not writing tests
-track: Software Engineering & Architecture
+track: Software Engineering & Architecture (2024)
 tweet: ''
 website_url: https://ep2024.europython.eu/session/adventures-in-not-writing-tests
 youtube_url: https://youtube.com/watch?v=tp8-2qeYCwY

diff --git a/src/content/sessions/CL3NZ9.mdx b/src/content/sessions/CL3NZ9.mdx
@@ -27,7 +27,7 @@ speakers:
 - jan-pipek
 start: '2024-07-09T13:45:00+02:00'
 title: Data Analysis, the Polars Way
-track: 'PyData: Software Packages & Jupyter'
+track: 'PyData: Software Packages & Jupyter (2024)'
 tweet: ''
 website_url: https://ep2024.europython.eu/session/data-analysis-the-polars-way
 youtube_url: null

diff --git a/src/content/sessions/CLNN9A.mdx b/src/content/sessions/CLNN9A.mdx
@@ -29,7 +29,7 @@ speakers:
 - anna-pristoupilova
 start: '2024-07-10T16:40:00+02:00'
 title: Deciphering the mysteries of human genomes
-track: Career, Life, Health
+track: Career, Life, Health (2024)
 tweet: Discover the secrets of human genomes! Join this talk in which we will explore
   the interface between biology, technology and medicine, in the context of the research
   of rare genetic diseases.