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sylmaiOR edited this page Jun 27, 2025 · 2 revisions

ORPHAcodes e-learning course (2024)

Orphanet online e-learning basic course about ORPHAcodes available at ORPHAcodes for rare diseases - Sjelden

  • in English
  • about 30 minutes
  • for all interested in Rare Diseases (clinician, patient registry, project manager, coder, ERN coord..)
  • introduction to the Orphanet nomenclature of rare diseases and the advantages of using ORPHAcodes

Where to find training materials on ORPHAcodes?

You can contact Your Orphanet Nomenclature National Hub or the Coordinating team via this Github to request info/material or to organise a training session or any other ORPHAcoding Capacity Building event.

Where to find tutorials about Orphanet and the Nomenclature ?

Over time, we are developing short videos tutorials for helping using our tools. You can find them at Orphanet Tutorials YouTube channel in English and other languages. The collection is progressively growing.

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