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sylmaiOR edited this page Jun 27, 2025 · 2 revisions

ORPHAcodes e-learning course (2024)

Orphanet online e-learning basic course about ORPHAcodes available at ORPHAcodes for rare diseases - Sjelden

  • in English
  • about 30 minutes
  • for all interested in Rare Diseases (clinician, patient registry, project manager, coder, ERN coord..)
  • introduction to the Orphanet nomenclature of rare diseases and the advantages of using ORPHAcodes

Where to find training materials on ORPHAcodes?

Training material in English will be available here soon. For training material or to organise a training in your national language please contact your Orphanet Nomenclature National Hub or the Orphanet coordinating team.

Where to find tutorials about Orphanet and the Nomenclature ?

Over time, we are developing short videos tutorials for helping using our tools. You can find them at Orphanet Tutorials YouTube channel in English and other languages. The collection is progressively growing.

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