🙋♀️ Who We Are
Rett Syndrome Europe (RSE) is a nonprofit organization dedicated to improving the quality of life for individuals affected by Rett Syndrome across Europe. We work closely with families, researchers, clinicians, and local associations to advance research, treatment, and support for those impacted by this rare neurological disorder.
🌈 How You Can Contribute
Join us in shaping the future for Rett Syndrome patients! Whether you're a developer, researcher, or advocate, your skills and knowledge can help move our projects forward. You can get involved by contributing to the Rett Syndrome Patient Registry project, sharing your expertise in medical data management, or assisting with community outreach initiatives.
👩💻 Useful Resources
Our core project, the Rett Syndrome Patient Registry, is available here, where we aim to establish a pan-European database to support research and better care for Rett Syndrome patients. Learn more about our work and access our documentation in the repository.
📄 Documentation
🔗 Rett Syndrome Europe
🍿 Fun Facts
Our team is a diverse group of passionate individuals from across Europe who believe in the power of collaboration. We enjoy celebrating small wins with virtual coffee breaks and love sharing new ideas to push our mission forward!
🧙 Together, We Can Do Mighty Things!
With the power of open-source collaboration, we believe we can accelerate progress in Rett Syndrome research and create a brighter future for everyone impacted by this condition.